Tomorrow is Rare Disease Day. An annual awareness raising event for those living with rare diseases and the decision makers about the impact of these diseases on the patients lives. It’s to raise awareness to everyone, because we all come into contact with people who may not even look as though they have an illness, […]
Ehlers Danlos Syndrome
I mention that I live with the disorder Ehlers Danlos Syndrome but I know I don’t really explain it, so I thought what better time to do it, than the difficult “E” subject on the A to Z challenge. I was initially scratching my head on what to write about, until my other half pointed […]
Acupuncture For POTS and EDS
Nearly every day on the blog I get a search hit for the phrase acupuncture for POTS, so I thought I should probably update the blog on how the acupuncture is going as it’s been a while. If you remember, I’m having acupuncture specifically for POTS (Postural Orthostatic Tachycardia Syndrome) related symptoms of insomnia and […]
Living With Invisible Illness
I started this year with all the good intentions of posting regularly on the blog. Keeping to a schedule. We’re not even out of the first month and I failed. I thought I would tell you a little bit about the why. On my “About Me” page and my Twitter profile, I say I have […]
Learning Give And Take With An Illness In Your Life
Most of the time, my mind is alert. Inquisitive. I want to know everything. I want to know about the world around me, and in that knowing, I want to experience those things around me. I want to know it all and I want to know it now. I want to write a novel and […]
My Kingdom For A guest Post
Okay, maybe not my kingdom, though there isn’t much in my so called kingdom to be handing over anyway, but you get the sentiment behind the phrase. I need some new guest posters. The guest post is a fixed slot on a Monday. Originally, they were some guidelines on what the guest could post about, […]
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