This question is the first in a list of 52 questions (Don’t worry, I may not do them all) on Rose B. Fischer’s blog. It’s part of an awareness raising campaign called Redefining Disability. I’ve mentioned my own disability a few times, I’ve seen a lot of campaigning for the raising of mental health awareness […]
If We Were Having Coffee
This post is part of a weekly meme by PartTimeMonster where bloggers talk about the week they’ve had as if they were all sitting down together for a coffee and catch up. The blog posts are also shared on Twitter using the hashtag #weekendcoffeeshare I think it’s a great idea because we’re all so busy filling […]
The Past, The Future And My Friends
It’s that time of year again when we look back at what has passed and then towards the future. For me this is going to be a difficult post because I usually like to keep my posts reasonably short, but a lot has happened and I have a lot planned out in front of me. […]
Living With Ehlers Danlos Syndrome And Writing
This is a short video that I shared online yesterday. Some of you may have already seen it. If not, it’s where I explain what EDS is and how I cope with it daily and manage my writing life around it. I really wanted people to understand that though I talk about it to raise […]
Ehlers Danlos Syndrome – My Personal Update
Last Thursday I was in London to see Professor Grahame. A top specialist in the field of Ehlers Danlos Syndrome. I was there because I was at the end of my tether, running out of hope and he was my last chance at getting to the bottom of what is disabling me so much. You […]
Ehlers-Danlos Syndrome Conference Weekend
As you know, I attended the Ehlers Danlos UK conference this past weekend and what a packed weekend it was! There were eminent speakers in the EDS field from home and as far afield as the United States and they covered a whole host of topics. Here are the itineraries for day two and day […]