I haven’t updated the blog with a personal update in a long time, so after having some treatment, and having something to update you with now, I thought it would be a good time to do just that. A quick recap for anyone who isn’t aware, or who may have forgotten because of the length…
Using Food In The Battle For My Health
My health is deteriorating, but I’ve found a new way to take charge and to help myself in this constant battle with my own body. Food. Yes, the food I am putting into my body, or more specifically, the food I am now no longer putting into my body, is helping in my day-to-day battle…
Who’s Looking After The Zebras?
When you hear hoofbeats think horses not zebras. That’s what medical students are taught during training. What does this mean? That, when you have a patient with a list of symptoms, reach for the more common, more likely diagnosis, rather than the rare diagnosis. Because the rarer diagnosis sticks in the mind more easily, students…
Travelling Across The Atlantic For Medical Help
On Monday my other half and I flew out to Washington DC for the medical appointments I have been wanting to deal with for some time. This is where the neurosurgeon who has a real understanding of how the Ehlers Danlos Syndrome body can affect the neck and make it unstable, is based. This is where…
Falling Over The Pain Precipice And The Future
Some of you may have noticed I have been fairly quiet on social media of late. I haven’t been on Twitter, my Facebook use is limited and my blog is being pretty neglected. The reason for this is that a couple of weeks ago I went right over that precipice, over the cliff edge of…
Going Backwards
It’s been a while since I updated you, or did a video diary entry, on the whole, neck issue thing that I’ve been living with. So, as things have taken a backwards turn this past week or so, I thought it was a perfect time to provide that update. I’ve done a video entry and…
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