It’s been a while since I updated you, or did a video diary entry, on the whole, neck issue thing that I’ve been living with. So, as things have taken a backwards turn this past week or so, I thought it was a perfect time to provide that update. I’ve done a video entry and […]
1st Video Diary Entry For Ehlers-Danlos Syndrome Neck Issues
As I mentioned a couple of weeks ago in this post, I was going to start a video diary about my journey to get a surgical diagnosis and intervention to repair my medically damaged neck. This is my first diary entry. I won’t post all entries on the blog, they will go onto the playlist […]
Ehlers Danlos Syndrome – Craniocervical Instability – A Diary
Some of you will know from following me on social media (Twitter and Facebook) that I went to an Ehlers Danlos Syndrome conference in London at the weekend. It was organised by the Ehlers Danlos Syndrome UK charity and was about craniocervical instability. Some top Dr’s from the United States came over to talk to us […]
Redefining Disability – Interpersonal Relationships
Back in February I did a post that was the first in a list of 52 questions on Rose B. Fischer’s blog. It was part of an awareness raising campaign called Redefining Disability. I do mention my own disability a few times, I’ve seen a lot of campaigning for the raising of mental health awareness […]