On Monday my other half and I flew out to Washington DC for the medical appointments I have been wanting to deal with for some time. This is where the neurosurgeon who has a real understanding of how the Ehlers Danlos Syndrome body can affect the neck and make it unstable, is based. This is where I hope to get some answers, support, and help. It’s just unfortunate and sad really that I have to travel halfway across the world to get that. Sad that we can’t access it in the UK. But, needs must, and I travelled.
We have rented a lovely little one bedroomed AirBnB apartment in the Capitol Hill area of Washington. If you’ve never heard of AirBnB, I’d highly recommend you look them up. For a lot less than the cost of a hotel, we have the run of an entire apartment and it’s clean and in a lovely location.
Tuesday we took it easy, walked to the local supermarket in the morning and did some shopping and in the afternoon we walked some more, taking in the local neighbourhood, which is so pretty. Though, it might be classed as a legal nightmare in the UK. The pavements are block paved and some of them are very uneven and wave-like. Some are even all uprooted where tree roots have pushed up. This would give the sue-everyone-for-everything people a field day as they walk around with their tape measures for lips in paving slabs back home.
One thing I found and loved was a tiny library in a garden!
Also, a number of squirrels running free along the gardens. Beautiful little animals all over the place.
Today I take my CT and MRI discs to the neurosurgeon and have the all-important appointment. This is the part I am terrified about. I am absolutely terrified that he will tell me that though my symptoms are bad, I don’t fall into his criteria where he can help me, which means I will have to continue to live as I have been doing, which, to be honest, is no quality of life for any person at all. And if this is the case, then I’ve wasted a lot of money to get over here and a lot of hope in the process as well.
So, if you can spare any hope today, I’d really appreciate you sending some my way because you’re probably reading this before I get to my appointment.
You might have seen me on social media the past couple of days, but I will probably be quiet today and tomorrow as I digest what comes out of the appointment, be that good news or bad. Even good news, is bad news in itself.
When I’ve had time to take in the results and digest them myself, I will update you. And also keep the picture diary flowing of my time here.
Thank you in advance for any hope help. It’s much appreciated.