This weekend I shall be at the national charity Ehlers Danlos UK‘s, residential conference in Birmingham.
It’s going to be a busy and full weekend but one I’m looking forward to. There is a full timetable of exceptional speakers who are specialists in their field which is one of the reasons I’m going. It is pretty full on though, so I expect to be paying for it next week.
This is the line up for Saturday and Sunday and gives you some idea of what someone living with EDS could potentially have to deal with.
|7.00-8.00||Breakfast and registration|
|8.30am||Dr Clair Francomano||Chiari and cranial instability|
|9.30am||Dr Brad Tinkle||Keynote Speaker – EDS Myths and Facts on EDS|
|10.45am||Dr Hanna KazKaz||Management Tips with EDS|
|11.30am||Dr Khullar||The bladder and EDS|
|1.30pm||Dr Jane Simmonds||What is Working? Physiotherapy and EDS – Lessons Learned from Case Studies and Research.|
|2pm||Dr Netali Levi||Psychological features with EDS and how best to cope|
|2.45pm||Dr Alan Hakim||Chronic Fatigue and Fibromyalgia|
|3.45pm||Professor Aziz||Gastrointestinal features of EDS|
|5pm||End of sessions|
|7pm||Zebra Ball, Auction and Entertainment|
|7.00-9.00||Breakfast and registration|
|9am||Dr Brad Tinkle||Keynote Speaker – Your Child and EDS|
|10.15am||Professor Rodney Grahame||EDS 2014|
|11am||Dr Jessica Eccles||Autism and ADHD and EDS|
|12pm||Dr Suranjith||Mast Cell / Histamine Disorders and EDS|
|2pm||Professor Mathias||PoTS and EDS|
|2.45pm||Dr Will Wallis||Cardiac Features of Hypermobility EDS|
|3.15pm||Q&A||Speech and Swallowing in EDS|
|4.15pm||Angela Hunter||EDS – its often not so easy to Swallow – inc TMJ|
|5.45pm||End of conference|
I also get to meet people who live with the disorder day in day out and understand. They won’t look at me funny if I say I need to go and lie down for an hour! There is a ball on the Saturday evening which I’ve bought a new dress for and I hope to wear, but if it’s anything like Harrogate, I won’t even make it out of my room! I just hope the hotel has a decent Wifi! I hope to be able to tell you a little about it next week. Because I am away, there may not be a post on Monday unless I am able to schedule one in while I’m there.
Have a great weekend whatever you’re doing!